TOVA
213 Greenhill Ave.
Wilmington, DE 19805
302-429-5870 ext. 120
www.tovacommunityhealth.org
Providing Culturally Responsive News and Commentary to build Healthy Families and Communities.
As you know transition of persons with complex chronic medical conditions is dear to my heart. I can remember like it was yesterday one of my young adult patients lay lifeless in the local ER who we we unable to transition into an adult sickle cell program. From that point, I always asked myself -what went wrong? Why wasn't he able to articulate with the ER staff information about his condition and to call Marian Anderson Comprehensive Sickle Cell Center for the doctors to obtain specialty recommendations for providing care for crisis in other complications in the ER. Also,these outcomes were around the time when the New England Journal, 1995 published research findings on Hydroxyurea. Studies found that sickle cell crisis and acute chest were cut in half and became a game changer in the mid-nineties for sickle cell population. Moreover, Philadelphia, PA and Atlanta, GA both have Comprehensive Adult Sickle Cell programs.
Following the receipt of news that a blood sample had not been collected, the apprehension began to increase. I questioned whether the result was truly necessary information and if I had lived for so long without knowing my status, what was the point of discovering such information now. Dr. Anderson proceeded to explain that as someone who is very active in the gym, it is pertinent to be aware of my status as over-exertion combined with dehydration could trigger an acute crisis (episode of excruciating pain). After acquiring this information, I finally scheduled the appointment, which was quite painless. The phlebotomist drew a sample of my blood to be sent to the lab for a hemoglobin electrophoresis, which evaluates the different types of hemoglobin in the blood. The test had been conducted and the waiting period commenced. The waiting game was probably the worst part of the entire process because during this time I deliberated all of the “what if” scenarios. A few prolonged days passed and the results arrived providing a sigh of relief.